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When caregivers touch hearts

Posted by Bojana Nikolic on 21 April 2015 | 0 Comments

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Many of you were touched by the story of Cody Halfpenny, a patient featured in an earlier blog post.  Cody was born with a congenital heart defect called transposition of the great arteries (TGA), which causes the main arteries of the...

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Calling all gamers! Extra Life is an innovative event open to anyone keen to make a difference for sick and injured children. By playing video games or board games for 24 hours and asking friends and family to donate to their...

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Tune in to Ocean Radiothon

Posted by Bojana Nikolic on 16 April 2015 | 0 Comments

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  Over the last 13 years, Victoria radio station Ocean 98.5 has built awareness and raised funds for BC Children’s Hospital. Its efforts have been successful to say the least: to date, the Ocean Radiothon for Kids has raised more than...

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Celebrating Life Conference

Posted by Bojana Nikolic on 8 April 2015 | 0 Comments

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Congenital heart defects are the most common congenital irregularities in children. About one in 100 newborns in Canada are affected – mostly, with no direct known cause.  Every two years, the Children’s Heart Network hosts a collaborative heart disease conference by...

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CAUSES Clinic

Posted by Bojana Nikolic on 1 April 2015 | 0 Comments

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Grayson McGill and his family know firsthand the benefits of quick testing and results. Shortly after undergoing open-heart surgery to repair extensive defects, Grayson was diagnosed with Maple Syrup Urine Disease (MSUD), a rare and potentially fatal metabolic disease that...

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A heart for Cody

Posted by Bojana Nikolic on 31 March 2015 | 0 Comments

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Seventeen months is a long time to wait, especially for something as important as a new heart for your child. Cody Halfpenny was born with a congenital heart defect called transposition of the great arteries (TGA). TGA causes the main arteries...

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Sunjai raises the bar

Posted by Bojana Nikolic on 30 March 2015 | 0 Comments

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How can you say no to a cute child with a chocolate bar? Dougie Luv of DougieDog Hot Dogs, famous for his $100 hot dogs, sure couldn’t. He purchased a chocolate bar from Sunjai Sharma for $100 last month. Five-year-old Sunjai...

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Jeans Day 2015

Posted by Bojana Nikolic on 27 March 2015 | 0 Comments

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Want to join thousands of people from around the province and wear your jeans to show your support for BC’s kids? Simply purchase a Jeans Day™ button for $5 or a lapel pin for $20 at a participating retailer and...

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Epilepsy Awareness Day

Posted by Bojana Nikolic on 26 March 2015 | 0 Comments

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March 26 is Global Epilepsy Awareness Day, or “ Purple Day.” Though there is no cure for epilepsy, you can play a part in raising awareness – just wear purple on Purple Day, March 26. Did you know that an...

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Khol - a superhero

Posted by Melissa Martz on 12 February 2015 | 6 Comments

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First published in Children's Heart Network's Heart Matters Newsletter. Written by Khol's mom, Melissa Martz When my husband and I decided to have a baby we never dreamed that our first born would have a congenital heart defect. When I went...

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