Children Speak.Vandusens

Children Speak

Dear Children’s Hospital . . .

Cassandra Vandusen and her family struggled to come to terms with the effects of daughter Blayke’s rare disease and heart condition. Now they’re helping other families cope, by getting involved in efforts like Miracle Maker.

On September 22, 2012, my life – and the lives of everyone in my family – changed forever. Five days after our daughter Blayke was born, she was diagnosed with a chromosomal disorder called Turner Syndrome.
Turner Syndrome is very rare and affects only one in every 2,500 live births. Only females can have this syndrome and 99 per cent of babies diagnosed with it in-utero do not make it to birth.

When Blayke was just three weeks old, we found out that she had a heart defect due to her condition. After hours in surgery and a week’s stay at BC Children’s Hospital, Blayke fully recovered. She has since developed into a beautiful, funny, sassy little girl.

As a parent of a child who will face challenges that others may not, I was inspired to do more. That’s why we signed up to become Virtual Miracle Makers and fundraise for the hospital, with all proceeds benefiting the Children’s Heart Clinic. The support of the heart clinic and the care we’ve received has had a deep impact on me. We fundraise in the hope of making even the smallest change.

We try to do various events designed to bring our family and friends together — everything from bake sales to barbecues. I encourage others to sign up as a Virtual Miracle Maker and join us in making a difference in the lives of other children like Blayke. To learn more visit www.bcchf.ca/miracle-maker

Do you have a story about BC Children’s Hospital to tell? Please submit your Miracle Kid stories to stories@bcchf.ca

 


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