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Growing Up with Heart Disease: Celebrating Life Conference

Posted by Bojana Nikolic on 8 April 2015 | 0 Comments


Congenital heart defects are the most common congenital irregularities in children. About one in 100 newborns in Canada are affected – mostly, with no direct known cause. 

Every two years, the Children’s Heart Network hosts a collaborative heart disease conference by and for families and health-care professionals to provide education and support on growing up with heart disease. This year’s conference will be held on April 11-12 on the BC Children’s Hospital campus. The conference offers opportunities for physicians, nurses, psychologists, researchers and parents to learn from each other, and to share experiences of supporting children and youth with heart disease.

This year’s conference is dedicated to Jan Rooks, a cardiac nurse clinician at BC Children’s and former conference chair, who tragically lost her life last October. Conference attendees will be celebrating her life and the many lives she touched at BC Children’s Hospital.

For a complete list of conference highlights and information on how to register, please visit:

The Children’s Heart Network has helped support parents like Tracey Carpenter. Her daughter Avery was  diagnosed with a rare congenital heart defect – anomalous left coronary artery from the pulmonary artery (ALCAPA) – and receives ongoing care at BC Children’s. Read Tracey and Avery’s story in our latest edition of Speaking of Children.

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