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Miracle Weekend - Hannah Miller

Posted by Jessica Lambrick on 30 May 2015 | 0 Comments

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Parents of Hannah, Jessica and Isaac, submitted their story through our website. Throughout Miracle Weekend we'll be sharing the wonderful things that happen every day at BC Children's Hospital and around the province. Submit your story through one of our social media channels, or at bcchf.ca/share.

We were overwhelmed with joy when we discovered we were pregnant with our sweet baby girl. Our love for her grew over the 40 weeks of an extremely healthy pregnancy and at 39 weeks, we discovered she had two heart defects; a coarctation of the aorta and atrioventricular septal defect. Within 12 hours of the news, we packed our bags and relocated to Vancouver in order to have her at the best possible place, the BC Children's Hospital. We were incredibly blessed with her birth on December 4th, 2013 at the BC Women's Hospital. It was the best day of our lives. From there, she went directly to the Pediatric Intensive Care Unit at the BC Children's Hospital where they had been expecting her arrival for days. Hannah captured the hearts of the nurses and doctors that cared so much for her in the PICU. On top of Hannah's heart condition, the doctors discovered that Hannah had an extremely rare and fatal lung disease called Alveolar capillary dysplasia with misalignment of pulmonary veins (ACD/MPV). She received exceptional care from the amazing staff and we are incredibly grateful for the compassion, education, and expertise of everyone who cared for her. With the help of Hannah's family and the picu staff, Hannah fought a strong battle but, sadly, lost her struggle and passed away in our arms on the morning of December 10th.

BC Children's will always be a special place for us - it's where our daughter lived her entire life. We will continue to raise money and donate handmade blankets for the BC Children's Hospital in Hannah's memory and visit the hospital on her birthday every year.

 



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