Miracle Weekend - Ryan teBoekhorst
Thank you to Ryan's mom Melina, for submitting an update on Ryan during this year's Miracle Weekend.
When I was 16 weeks pregnant it was discovered during a routine ultrasound that there was something wrong with the development of Ryan's abdomen. I was sent to Women's Hospital for regular ultrasounds throughout my pregnancy and C-section delivered Ryan there. Ryan was diagnosed as having a duplicated right renal collecting system with an ureterocele in his bladder. When he was a day old he went in to have the ureterocele popped and hoped that would relieve some of the bladder issues. We continued with regular visits for the next 4 years but when Ryan was 4 he ended up in hospital for 3 weeks where is was discovered that the duplicated right kidney was causing some issues. Over the last 11 years Ryan has had approximately 20 procedures and surgeries requiring anesthetics. He has had part of his right kidney removed, has had his ureter re-implanted, and has now ended up with a Mitrofanoff stoma. His bladder no longer send the proper signal to his brain to empty and because of this he now needs to catheterize himself 5 times per day. Ryan has had many hospital stays due to some serious infections in both bladder and kidney and thinks of Children's Hospital as his second home. Just this February he spent time there as he required a revision of his stoma due to excessive scar tissue at the entrance of his bladder and he was not able to get a catheter in. No real fix so we continue hoping that one day this will end for Ryan and he will be able to live a happy, normal life.
Today, Ryan is a funny, charismatic, intelligent, and caring young man. He loves to play his video games, hang out with friends, and likes to hang out with his family. He continues to struggle with accepting his medical issues but tries to remain positive. His one dislike is that people sometimes don't take his medical issues seriously as on the outside he looks fine but the inside is not.
We would like to send our heart felt thank you to Dr. Afshar, Heidi and Maria for always being there for us and for the amazing care over the years. You are all angels in our lives. Also a huge thank you to all the fine nurses on 3R and 3F.